The Auditory Neuropathy Listserve Conference is a free conference for family members of AN patients and adult AN patients. It promises to be an exciting and educational weekend for parents of children with this unusual diagnosis. Presentations by the leading researchers on auditory neuropathy are planned, as well as discussions. Come prepared to ask anything and everything you always wanted to know about auditory neuropathy. You will hear the latest in treatment plans for your children, current research data related to the number of children affected and possible causes, and the latest in genetics, as it relates to auditory neuropathy. You can meet adults and children with auditory neuropathy that are using a variety of communication methods and some that have cochlear implants and learn how they are progressing. Learn how we deal with explaining the confusion of auditory neuropathy to family and friends. This is a wonderful opportunity to meet other parents with children that fit into this unusual category of hearing loss.
Bring the family and join us for a fun-filled learning experience in New Orleans, Louisiana! Don't worry about who will be watching the kids while you are in sessions! Child care will be provided by LSU Allied Health students and a teacher of the deaf proficient in signing and cueing. Adventure, fun, food, fellowship, education, and meeting new friends are all on the agenda. For those that attended either of the earlier conferences it will be exciting having the chance to reunite with people you met and finding out how their children are progressing. Even more exciting is for the new members to finally be able to put a face with the names you see in your email from the listserve!
Meet us in New Orleans for an educational and fun weekend!
These are the probable speakers at the conference but we are awaiting replies from others.
Tenative Conference PresentationsLSU/Kresge
Boystown National Research Hospital
- Charles I. Berlin, Ph. D.
- Linda J. Hood, Ph.D.
- Bronya Keats, Ph.D
University of CA, Irvine
- Renee Rogers Varga, Genetics Graduate Student
- Arnold Starr, MD
Schedule of Events
Wednesday-June 19, 2002
- Families arrive in New Orleans
Thursday-June 20, 2002
- Family fun day. There are many kid friendly attractions in the vicinity of the Doubletree. More information is coming on what is available for us to do and see. The Aquarium of the America's, IMAX theater, and Children's Museum are in the vacinity for the children. There are also attractions for adults including the French Quarter, D-Day Museum, Riverboat Cruises, Harrah's Casino, and shopping at the Riverwalk.
- Thursday Night we are invited to a free concert at Preservation Hall, a New Orleans favorite!
- 8:45 am -We will attend the session on Auditory Neuropathy/Dys-synchrony at Kresge Lab in the morning. In the afternoon there will be a parents panel featuring parents of hearing impaired children. They will be speaking about the impact of raising a hearing impaired child.....be sure to bring the tissues! There may also be a tour of Kresge's new laboratory facility. Childcare will be provided.
- There will be speakers including Arnold Starr,MD Linda Hood PhD, Bronya Keats PhD and Renee Rogers Varga. We are working on other speakers and/or activities for the day. Childcare will be provided.
To register for the conference please fill out the online registration form . Elaine will notify you by email that your information was received so you must put your email address on the registration sheet.